I've been asked twice in the last week if I had kids. This is a really difficult question...to say 'no' is so easy, almost automatic, reflecting the reality of what I feel every day. But at the same time, 'no' is denying that Elise ever existed, denying that I was her mother...am her mother. Yet saying 'yes' requires so much more emotional work and I feel like I then commit myself to the explanation. I know I don't have to explain but that's what I do. I talk when I don't need to and I don't do very well with silences. So, a 'yes' is telling her story which makes me feel excellent because it needs to be told but is not always convenient, does not fit into a short pretty package, does not have a happy ending.
I've been interviewing candidates for residency these past few weeks and Tuesday the question came. I said 'no' well 'yes' and recieved an interesting look from the applicant. I then gestured to the photo of Elise on the wall in my office and said 'we had a daughter who died of a brain hemorrhage in October.' If I must critique the interaction, it went over quite well (as well as something like this could go) and the candidate said she was sorry and I thanked her it and that was that. Today, one of the other attendings at my hospital was talking about her son's grades and, out of nowhere in the middle of her story, asked if I had children. Without thinking I said 'not yet' and immediately felt horrible. Before I could say anything else, she continued with her story. I totally would not have wanted to talk about Elise in that crowded elevator but at the same time, I just felt so sad that it seemed so easy for me to say 'no.' I feel weak for not saying 'yes,' and angry at myself for caring about other people feelings, for worrying about softening the blow for them.
This experience reminded me of a passage from an excellent book my mom sent to me, Life Touches Life: A Mother's Story of Stillbirth and Healing, by Lorraine Ash. Even though her experience is with stillbirth, so much of what she writes about resonates with me and our experience with infant loss.
"Mothers of stillborn children often wind up soothing others...Eventually we parents came to realize that we may be the only firsthand witnesses of life's brutalities that some people ever know. Talking to us may be as close as many people have ever come to real horror. Perhaps stillbirth moms are all that stand between tham and the horror, and they desperately want us to keep silent about what we experienced. No matter how great the need to testify, most people want us to shield them from the blood and pain. They would rather not know. They are afraid to know."
I want to thank you for not allowing us to be silent, for wanting to know, for not being afraid to know, for being willing to embrace our horror with us. I want to thank you for all the amazing things you've said and done...things I would never have known or thought to say or do...things I will always do from now on.